There's a children's medical care group called Rare Care. It operates in WA. Gets funds from Telethon. Support from major organisations. Based at PCH.
Nick Lethbridge / Consulting Dexitroboper
Agamedes Consulting / Problems? Solved.
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Nothing in life is to be feared. It is only to be understood
Does great things for sick kids -- specifically kids who are sick with rare diseases.
Sounds great. Tugging at our heart-strings.
Until you read (20 Jul) that they care for... sixty-three *thousand* kids. Just in WA.
Sorry mate but that is not "rare". Not unless the common cold is counted as rare.
It could be a case of poor reporting. Except for the group's purpose:
to develop personalised -- ie good for research papers, medicines, expensive, for the trickiest -- trips to overseas conferences, and often undiagnosed... whoa! ... nobody has even seen it...cases in children, oh how sad, give me money... across WA. except, of course that we need extensive overseas travel to see examples of these "rare" diseases.
Excuse my cynical response. Perhaps it is simply bad reporting.
Nick Lethbridge / Consulting Dexitroboper
Agamedes Consulting / Problems? Solved.
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Nothing in life is to be feared. It is only to be understood
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